TSW hurts! It's itchy and it's ugly and it's oozy and it's tiring and it's discouraging...but it's also painful. This is a post I recently wrote on the ITSAN forum about it:
Right now the pain is much worse than the itch. Up until recently, most of the time I didn't notice the pain as much because the itch was so intense that I couldn't think of anything else! But my itch is starting to be less intense (although it's definitely THERE, it's like white noise in the background that I can ignore most of the time) and that's probably why the pain is more noticeable.It's hard to describe but for me, there are a couple different kinds of pain:
- Scraped - This is what I feel most often and on my arms & hands especially (which are my worst parts. Have you had a really bad sunburn? Now imagine you have that really bad sunburn all over then you fall down a gravel hill then skid across the pavement. My skin feels like that. I feel like I'm scraped all over, like a million tiny paper cuts cover my body.
- Sore - Especially when I have a big scratching frenzy.
- Skin is too tight. I don't really know how to describe this but it hurts. I try to turn my head or open my mouth and I can't because the skin is so dry and tight. I guess this sort of goes with the soreness feeling.
- Burning - As if you had a sunburn then soaked the raw skin in rubbing alcohol all over
- Zappy nerve tingles - I've had these painful zaps all over my body sporadically but I get these in my breasts regularly and they HURT! It's like an electric zap/needle jab.
I've been taking ibuprofen or naproxen to help with the pain. I've tried long baths, soaking in epsom salts, ACV, milk, oil, anything! I've cycled through my mosturizers -- nothing, then Vaseline, then palm oil, then non-petrol jelly, then Eucerin Healing Creme, then oil, then nothing, now back on Vaseline. I just want something that sinks in like buttah! But nothing does. I found a recipe for a homemade one with cocoa butter and shea butter so I might try whipping that up soon.
My skin is as red as it was last month, as flaky as it's always been. The itch is better than it was three months ago, but the nerve tingles are worse. I've noticed that the "itchy spots" mostly start on bony areas...like my wrists, ribs, hipbone, knee, elbow, collarbone. But even though a bony spot gets my scratching started, I defitely scratch all over!
Mostly I am just stuck. I just want my skin to stop ACHING. Even if it's not beautiful or normal, at least if it would stop hurting, that would make things easier.
Oh, well. Another day, maybe.
