I'm still using my "homemade" petroleum jelly. I use oil (I think I like the olive better than castor), a little beeswax, Vitamin E oil, and calendula oil. It doesn't make lovely lotion like what normal people get to use, the kind that's creamy and sinks right in and smells delicious and leaves your skin soft without being greasy, but maybe someday I'll be able to use that nice kind again.
Recently there have seen very compelling (as in "Not able to be refuted; inspiring conviction") before-and-after shots of several TSW patients in the Facebook group and Google group. It's very motivating and I can't wait to have my own before-and-after shots. I plan to mail them to the dermatologist I saw a couple weeks ago, along with the articles on ITSAN about TSW. Of course, a dermatologist who has been trained that TS is the first line of defense and the only treatment for "lifelong incurable eczema with unknown causes" might dismiss my irrefutable evidence, but maybe it will make him think if he sees another patient like me.
To all of those reading this that have the same thing, hang in there! Nick from the Google group posted this, which is great advice:
Someday this will be a distant memory for all of us. It might take longer - way longer - than we like, but what other option is there? I couldn't keep slathering myself in TS for the next seventy years of my life! It wasn't working anyway...I still had "eczema" coming out even when I regularly used one of the strongest topical steroids.
The only way out is through!